Long Survey Questions

These are the questions that are in the long survey.

Questions about you

Question 1: Before we begin, we have to check whether you have done the alternative, shorter survey. You can choose which survey you do, but please only do one of them. Have you completed the shorter survey?

The shorter survey is only seven questions and is designed to be very accessible. If you want to do the shorter survey, go to this website: https://tinyurl.com/3nhxfkem

Yes, I have completed the longer survey
No, I have not completed the longer survey

Question 2: How old are you?

Younger than 15 years old
15-18 years old
19 -21 years old
22-24 years old
25-29 years old
30 years old or more
I would prefer not to say

Question 3: Do you identify as having a disability and/or mental illness?

Yes
No
I would prefer not to say

If ‘Yes’ (Option A) to Question 3: How would you describe your disability? Select all that apply.

An intellectual disability
A learning disability
A neurological disorder
Autism spectrum disorder
A medical illness
A mental health condition
A mobility impairment or physical disability
A sensory impairment (e.g., vision, hearing)
A temporary impairment
A disability or impairment not listed here
I would prefer to self-describe
I would prefer not to answer

If ‘Yes’ (Option A) to Question 3: How would you describe your disability? Select all that apply.

You can record your answer or type your answer in the text box. If you do not want to tell us more about your disability, you can skip this question.

Question 4: Many people provide help to people who are physically or mentally ill, have a disability, are old, or are using drugs or alcohol. This could be a parent, sibling, family, friend or someone else. Do you care for anyone like this on a regular basis?

Yes, and the person I care for does not live with me
Yes, and the person I care for lives with me
No
Other
I would prefer not to say

If ‘Other’ (Option D) to Question 4: Can you explain why you selected ‘Other’ in the previous question?

You can record your answer or type your answer in the text box. If you do not want to tell us, you can skip this question.

If ‘Yes’ (Options A or B) or ‘Other’ (Option D) to Question 4: Who do you look after? Select all that apply.

Parent
Step-Parent
Grandparent
Sibling
Neighbour
Friend
Partner
Other
I would prefer not to answer

Question 5: How do you currently describe your gender?

Woman
Man
Non-binary
Other
I would prefer not to answer

Question 6: Do you identify as culturally diverse?

Yes
No
I would prefer not to say

Question 7: Is English your main language at home?

Yes
I speak more than one main language at home
No
I would prefer not to say

Question 8: Do you identify as Aboriginal or Torres Strait Islander?

Yes
No
I would prefer not to say

Questions about the services you use

Question 9: What services do you use, or have you used in the past? If you are a young carer, you may select any service that you have interacted with, even if the person you are caring for is (or was) the main service-user. Select all that apply. Please select at least two services if possible.

general practitioner (GP)
specialist medical doctor
psychiatrist
psychologist or counsellor
nurse/s
disability support worker/s
case manager
support co-ordinator
NDIS plan manager
individual advocate
respite care services
telephone support services (e.g. Lifeline)
Carer Gateway services
employment services
peer support groups
education and learning support services
recreational services (e.g. theatre groups)
financial help (e.g. Centrelink)
child protection services
transport services
pastoral or religious support
culturally-specific services
other service or support

Question 10: Which of these services do you use, or have you used, the most? Select one.

[Answer options dependent on your answers to question 9]

The following questions (Questions 11-19) will be about the service you use the most [selected in question 10].

Question 11: On a scale of one to ten, how well did this service (Question 10 answer) listen to you? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 12: On a scale of one to ten, did you trust this service (Question 10 answer)? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 13: On a scale of one to ten, did this service (Question 10 answer) ask you your opinion? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 14: On a scale of one to ten, did you feel able to ask this service (Question 10 answer) questions? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 15: On a scale of one to ten, did this service (Question 10 answer) answer your questions? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 16: On a scale of one to ten, did this service (Question 10 answer) help you when you needed help? 0 = not at all, 5 = sometimes, 10 = always

You can record your answer or drag the black dot to choose a number on the slider.

Question 17: Have you ever wanted to give feedback to this service (Question 10 answer)? Feedback includes complaints.

Yes
No
I would prefer not to answer

If ‘Yes’ (Option A) to Question 17: Question 18: Have you ever given feedback to this service (Question 10 answer)?

Yes
No
I would prefer not to answer

If ‘Yes’ (Option A) to Question 18: Why did you feel able to give feedback to this service (Question 10 answer)?

You can record your answer or type your answer in the text box.

If ‘No’ (Option A) to Question 18: Why did you feel unable to give feedback to this service (Question 10 answer)?

You can record your answer or type your answer in the text box.

Question 19: Is there anything else you would like to tell us about this service (Question 10 answer)?

You can record your answer or type your answer in the text box.

At this point in the survey, you will be asked if you want to answer these same questions (questions 11-19) about a second service, or if you want to skip to the next section. If you choose to skip, you will proceed to question 20.

Question 20: Have you ever participated in an advisory group or a co-design group for an organisation or service provider?

Yes
No
I would prefer not to answer

Question 21: Did you feel listened to when you participated in this group? Why/why not?

You can record your answer or type your answer in the text box.

Good Listening

Question 22: On a scale of one to ten, how important is it that you are listened to by those around you? 0 = not at all, 5 = a little bit important, 10 = very important.

You can record your answer or drag the black dot to choose a number on the slider.

Question 23: Why is it important or unimportant to you that you are listened to?

You can record your answer or type your answer in the text box.

Question 24: How would you describe good listening?

You can record your answer or type your answer in the text box.

Question 25: When you feel that you are listened to well or very well, what are people doing?

You can record your answer or type your answer in the text box.

Listening Better

Question 26: In what areas of your life do you want to be listened to better?

You can record your answer or type your answer in the text box.

Question 27: In what areas of your life do you want to be listened to better?

You can record your answer or type your answer in the text box.

Final Questions

Question 28: You are nearly at the end of the survey. You are now invited to participate in a follow up interview. In the interview, we will ask you more questions about your experiences of listening and being heard. You do not have to do the interview, but if you are interested in it, please share your email or phone number and we will contact you with more information. Giving us your contact information does not mean you have to participate in the follow up interview. You can decide after we give you more information about it. If you do not want to participate in an interview, you can skip this question.

Question 29: Once the research project is complete, we can send you a summary of the research findings. If you would like to receive this summary, please share your email or phone number below. If you do not want to receive a summary, you can skip this question.